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Table 1 Demographic characteristics of survey and interview participants

From: Experiences of participants with undiagnosed diseases and hereditary cancers during the initial phase of the Hong Kong genome project: a mixed-methods study

Characteristics

Survey participants,

[n = 325] (%)

Interview participants

[n = 21] (%)

Age group

  

 ≤19

50 (15.4)

4 (19.0)

 20–39

81 (24.9)

7 (33.3)

 40–59

105 (32.3)

2 (9.5)

 ≥60

89 (27.4)

8 (38.1)

Gender

  

 Male

159 (48.9)

7 (33.3)

 Female

165 (50.8)

14 (66.7)

 Other

1 (0.3)

0 (0)

Ethnicity

  

 Chinese

320 (98.5)

21 (100)

 Other

5 (1.5)

0 (0)

Marital Status

  

 Married

196 (60.3)

13 (61.9)

 Other Marital Status

129 (39.7)

8 (38.1)

Household Income Level (in HKD)

  

 ≤$19,999

35 (10.8)

4 (19.0)

 $20,000–$29,999

57 (17.5)

1 (4.8)

 $30,000–$39,999

38 (11.7)

3 (14.3)

 $40,000–$59,999

49 (15.1)

5 (23.5)

 ≥$60,000

63 (19.4)

4 (19.0)

 (Refused to answer)

83 (25.5)

4 (19.0)

Type of Housing

  

 Public Housing

108 (33.2)

8 (38.1)

 Private Permanent Housing

177 (54.5)

11 (52.4)

 Other Types of Housing

29 (8.9)

0 (0)

 (Refused to answer)

11 (3.4)

2 (9.5)

Educational level

  

 Primary or below

58 (17.8)

4 (19.0)

 Secondary

135 (41.5)

11 (52.4)

 Tertiary or above

132 (40.6)

6 (28.6)

Time from first consultation with healthcare provider for a suspected genetic disorder

  

 Within a year

104 (32.0)

7 (33.3)

 More than a year ago

70 (21.5)

3 (14.3)

 More than three years ago

37 (11.4)

4 (19.0)

 More than five years ago

42 (12.9)

2 (9.5)

 More than ten years ago

72 (22.2)

5 (23.5)